Pancreas Advisory Group
Download minutes, agendas and papers
Forthcoming meetings
Thursday 28 November 2024 - 09:00 to 17:30, The Wesley Hotel & Conference Venue, Euston House, 81-103 Euston Street, London, NW1 2EZ
Minutes and agendas
Minutes
Papers
May 2024
- ODT clinical governance report May 2024 (PDF 320KB)
- Summary of CUSUM monitoring of outcomes following pancreas transplantation (PDF 65KB)
- Comparison of types of transplant (PDF 98KB)
- Organ damage and quality (PDF 39KB)
- Hypothermic oxygenated pancreas perfusion (HOPP) study (PDF 1.2MB)
- Pancreas fast track scheme (PDF 110KB)
- Transplant list and transplant activity (PDF 99KB)
- Pancreas transplant outcome (PDF 301KB)
- Isolation statistics (PDF 284KB)
- Islet transplant activity and outcome summary (PDF 563KB)
- Audit of standard criteria for listing (PDF 113KB)
- Summary from statistics and clinical research (PDF 77KB)
- Activity paper - March 2024 (PDF 100KB)
- Current and proposed clinical research items (PDF 15KB)
- QUOD statistics - April 2024 (PDF 651KB)
March 2023
- Clinical Governance report (PDF 402KB)
- Current and proposed clinical research items (PDF 17KB)
- Islet activity and outcome (PDF 599KB)
- Isolation statistics (PDF 304KB)
- Pancreas Fast Track Scheme (PDF 105KB)
- Summary from statistics and clinical research (PDF 26KB)
- Transplant activity report (PDF 99KB)
- Transplant list and transplant activity (PDF 103KB)
- Transplant outcome (PDF 282KB)
November 2023
- Clinical Governance report (PDF 411KB)
- Current and proposed clinical research items (PDF 15KB)
- Islet activity and outcome (PDF 510KB)
- Isolation statistics (PDF 275KB)
- Pancreas Fast Track Scheme (PDF 96KB)
- Standard listing criteria (PDF 95KB)
- Summary from statistics and clinical research (PDF 71KB)
- Transplant list and transplant activity (PDF 114KB)
- Transplant outcome (PDF 281KB)
November 2022
- Pancreas Fast Track Scheme (PDF 73KB)
- Transplant list and transplant activity (PDF 67KB)
- Transplant outcome (PDF 199KB)
- National Pancreas Offering Scheme 36 month activity (PDF 258KB)
- Isolation statistics (PDF 281KB)
- Islet activity and outcome (PDF 367KB)
- Standard listing criteria (PDF 84KB)
- Summary from statistics and clinical research (PDF 16KB)
April 2022
- Impact of pancreas damage on outcomes (PDF 143KB)
- Organ damage and quality (PDF 138KB)
- Pancreas Fast Track Scheme (PDF 87KB)
- Transplant list and transplant activity (PDF 104KB)
- Transplant outcome (PDF 591KB)
- Isolation statistics (PDF 308KB)
- Islet activity and outcome (PDF 625KB)
- Pancreases for islet transplantation (PDF 166KB)
- Standard listing criteria (PDF 112KB)
- Summary from statistics and clinical research (PDF 75KB)
November 2021
- Hepatitis C - Patient Information Booklet (PDF 399KB)
- Pancreas risk communication tool (PDF 322KB)
- National Pancreas Offering Scheme 24 month activity (PDF 290KB)
- Pancreas Fast Track Scheme (PDF 124KB)
- Transplant list and transplant activity (PDF 214KB)
- Transplant outcome (PDF 376KB)
- Islet activity and outcome (PDF 614KB)
- Isolation statistics (PDF 266KB)
- Standard listing criteria (PDF 111KB)
- Summary from statistics and clinical studies (PDF 105KB)
- Clinical Governance Report (PDF 553KB)
April 2021
- Organ damage report (PDF 94KB)
- Fast track scheme (PDF 132KB)
- Transplant list and transplant activity (PDF 110KB)
- Transplant outcome (PDF 362KB)
- Islet transplant activity and outcome (PDF 686KB)
- Islet isolation outcomes (PDF 322KB)
- Standard listing criteria summary (PDF 116KB)
- Summary from Statistics & Clinical Studies (PDF 110KB)
- Clinical Governance Report (PDF 326KB)
November 2020
- NPOS 12 month activity (PDF 349KB)
- Pancreas Fast Track Scheme (PDF 100KB)
- Transplant list and transplant activity (PDF 170KB)
- Transplant outcome (PDF 321KB)
- Islet activity and outcome (PDF 551KB)
- Isolation statistics (PDF 303KB)
- Standard listing criteria (PDF 118KB)
- Summary from statistics and clinical studies (PDF 98KB)
September 2020
- Pancreas report up to 31 August 2020 (PDF 61KB)
- Weekly Report on CoVID-19 NHSBT 19 August 2020 (PDF 593KB)
April 2020
- Activity Paper February 2020
- Fast Track Action Point
- Islet activity and outcome
- Islet Isolation statistics
- NPOS 6 month Review
- Pancreas CUSUM report
- Pancreas Fast Track Scheme
- Standard listing criteria
- Summary from statistics and clinical studies
- Transplant list and transplant activity
- Transplant outcome
November 2019
- Outcomes of transplanted kidneys that were previously accepted with the pancreas
- Pancreas CUSUM report
- Organ Damage report
- Age limits of pancreas donors
- Revised National Pancreas Offering Scheme
- Transplant list and transplant activity
- Transplant outcome
- Pancreas Fast Track Scheme
- Islet activity and outcome
- Isolation statistics
- Standard listing criteria
May 2019
- Islet activity and outcome
- Isolation statistics
- NPAS 8 Year Review
- Offer review schemes
- Offers declined for logistical reasons
- Pancreas CUSUM report
- Pancreas Fast Track Scheme
- Recording reasons for pancreas decline or non-use
- Standard listing criteria
- Summary from statistics and clinical studies
- Transplant list and transplant activity
- Transplant outcome
November 2018
- Pancreas information booklet
- Changes to National Pancreas Allocation Scheme
- Clinical Governance Advisory Report for PAG
- In-depth analysis Pancreas Fast Track Scheme
- Islet activity and outcome
- Isolation statistics
- Late notification of pancreases split from potential MVT blocs
- Organ Damage
- Organ Quality eForms update
- Pancreas CUSUM report
- Pancreas Fast Track Scheme
- Reasons for pancreas non-use
- Standard listing criteria
- Transplant list and transplant activity
- Transplant outcome
April 2018
- Islet transplantation
- Isolation statistics
- NPAS 7 year review
- PAG clinical governance report
- Pancreas CUSUM report
- Pancreas Fast Track Scheme
- Pancreas utilisation
- Proposed kidney offering scheme
- QUOD statistics 2018
- Standard listing criteria
- Summary from stats and clinical studies
- Your pancreas transplant: Information for patients
- Transplant list and transplant activity
- Transplant outcome
- Organ utilisation and damage working group update
November 2017
- Islet transplantation
- Organ Utilisation and Damage
- Pancreas Fast Track Scheme
- Summary from stats and clinical studies
- Your pancreas transplant: Information for patients
- Isolation statistics
- PAG clinical governance report
- Standard listing criteria
- Transplant list and transplant activity
- Organ Damage
- Pancreas CUSUM report
- Standard pancreas transplant dataset
- Transplant outcome
April 2017
- NPAS 6 Year Review
- Pancreas CUSUM report
- Patient Consent Scheme Audit
- Standard listing criteria - Summary
- Transplant list and transplant activity
- Transplant centre dashboards
- Islet transplant outcomes
- PAG clinical governance report
- Pancreas Fast Track Scheme report
- Report from the Organ Utilisation and Damage Working Group
- Summary from stats and clinical studies
- Transplant outcome
November 2016
- Transplant Activity Report
- Update on organ utilisation working group
- Islet Transplant Outcomes
- Patient Consent
- Summary of CUSUM monitoring of outcomes following pancreas transplantation
- NHSBT ICT Update for Advisory Groups
- Classification pancreas function after transplantation and pathway for investigation of impaired pancreas function
- Audit of standard criteria for listing
- Pancreas fast track scheme
- Pancreas transplant outcome
- Summary from statistics and clinical studies
Archived resources
Note: Archived resources are PDF files grouped together within ZIP files.
- PAG Agendas - April 2011 - November 2016
- (April 2011 - November 2016)
- PAG Minutes 2011-2016
- (April 2011 - November 2016)
Terms of Reference
The major role of the organ Advisory groups is to advise NHSBT to help promote all aspects of organ transplantation and ensure equity of access and best outcomes for all patients.
Membership
Chair:
- Appointment: applications will be invited from transplant health care professionals and the Chair will be appointed by NHSBT after consultation with the relevant Advisory Group.
- Tenure: The Chair will be appointed for 3 years in the first instance, with the possibility of renewal for a subsequent term. Remuneration: The Chair will receive from NHSBT a Special Duty Payment.
- Support: The Chair, and the Advisory group, will have defined administrative and statistical support from NHSBT to help deliver the aims of the group.
- Appraisal: the Chair will meet the Associate Medical Director for Organ Donation and Transplantation every year for a formal review of progress made, to agree targets for future work and a work plan.
Membership of the Advisory Group will vary between the groups but will typically include:
- Chair
- Voting members:
- Representation from each designated transplant centre or group of centres One representative for paediatric recipients (where appropriate)
- Non-voting members:
- Representative from NCG/commissioning groups
- Representatives from the national Departments of Health
- Director of Organ Donation and Transplantation (ODT)
- Associate Medical Director ODT
- Associate Director of Statistics and Clinical Studies
- Director of Donor Care & Co-ordination
- Clinical Leads for Retrieval and for Donation
Other members co-opted by the Advisory group (may include representatives from relevant professional bodies, societies and Colleges) The Chair, in discussion with members of the Group, will include other appropriate members.
Representatives from the Republic of Ireland will be welcome.
Members will be responsible for bringing to the Advisory Group any relevant concerns or suggestions from the centres they represent: where possible this should be in writing so that the paper can be circulated prior to the meeting. Members are also responsible for circulating minutes and other discussion items and items of relevance within their organisations (to clinicians, managers and other relevant parties).
Members of the Group will also be responsible for responding to relevant items on the Agenda brought forward by the Chair or Associate Medical Director.
Deputy Chair: the Advisory Group will agree a Deputy Chair who will assume the role and duties of the Chair when the Chair is unavailable, when there are possible conflicts of interest or at the request of the Chair.
The representative(s) from each centre will be determined by the Centre Director who will also agree the tenure for each representative’s membership. Voting:
If an agreement cannot be reached by consensus, a vote will be taken: a majority will be binding.
The Chair will have a casting vote but will not take part in the initial vote. Frequency of meetings The Advisory Group will meet at least twice a year at a venue to be agreed. Sub-groups
It is anticipated that the Advisory Groups will have sub-groups to address specific aspects of transplantation or issues; the nature, membership, frequency, life time and venue of these meetings will be at the discretion of the Advisory Group.
The Advisory Group will appoint a sub-group which will be responsible, to the Advisory Group and to ODT, for assessing applications for data that is held by ODT: the sub-group should assess the scientific validity of the request, the analytical methodology, the output and ensure that all interested parties are in support of the application and are recognised in any output (such as an abstract or manuscript); the sub-group should also indicate the priority of each application so that the Associate Director of Statistics and Clinical Audit can prioritise the available resources.
These sub-groups will report formally to the Advisory Group.
Additional meetings
Open meetings
It is recommended that Advisory groups will consider holding open meetings where there will be a wider representation of the transplant community. The Chair, together with the Associate Medical Director, will meet, at least annually, with relevant, interested parties, including patient representative bodies, patient groups and disease-specific patient bodies.
Minutes
The minutes of each meeting will be taken by the NHSBT (ODT) Secretariat.
The minutes and all papers of the Advisory Group meetings that could be requested under the Freedom of Information Act will be published (when approved) on the NHSBT web-site, unless they contain patient - identifiable material.
Minutes will be circulated electronically.
Support
Budget
The groups will be allocated an agreed budget, administered by NHSBT, which will include travel expenses, hosting of meetings, working parties, consensus meetings and other relevant activities. Accountability for the budget will be with the Chair of the Group but the budget will be held within ODT.
Statistical and analytical support
Each Advisory group will be allocated an agreed level of support from the Directorate of Statistics and Clinical Audit to support the activities of the group: this support will be used for analysis of outcomes, audit, governance issues, service evaluation, modelling of alternative methods of service delivery and other projects, agreed with the Chair of the Advisory Group, the Associate Director of Statistics and Clinical Audit and the Associate Medical Director ODT.
The Chair of the Group, Associate Director of Statistics and Clinical Audit and Associate Medical Director will meet at least every 6 months to agree the agenda, new projects and assign priorities.
Administrative support
The Corporate Services section of ODT will provide an agreed level of administrative support, to help with the planning and organisation of meetings, minute taking and other relevant matters.
Role of Advisory group
The Advisory Group will:
- consider formally at each 6-monthly meeting and advise NHSBT on operational aspects of transplantation including:
- organ retrieval
- recipient selection criteria
- methods of organ allocation
- data analysis with respect to activity and outcome. recommend, as necessary, promote and implement changes to the nationallyagreed protocols
- advise NHSBT and other bodies on appropriate methods of monitoring outcomes and interpretation of findings
- monitor and report on clinical governance with especial reference to outcomes and deviations from expected outcome
- deviation from agreed protocols in selection and/or allocation
- equity of access of patients to transplantation throughout the UK evaluation and comments on issues raised by investigations into triggers from outcomes analysis, investigations and other issues
- identify and promote areas of audit and research
- remit to ODT matters of practice or policy that require consideration within a broader framework.
- liaise as necessary with the British Transplantation Society and other professional bodies in the development of national standards
- Provide 6 monthly reports of clinical governance
- Respond to and advise on or implement aspects of donation and transplant policy that arise from legal and/or policy developments both within the UK and more widely.
Notes:
Consideration of selection and allocation will require clarification of the aims of the processes, proposals to measure the outcomes and regular audit to ensure the criteria are followed and adjusted as indicated.
Protocols and policies agreed by the Advisory Groups will need ratification by the Board of NHSBT, prior to implementation.
Equity (in the context of this document) implies that a potential recipient anywhere in the UK will have the same likelihood of being placed on the transplant list and a patient on the transplant list has the same probability of receiving a graft, wherever in the UK he/she resides and at whichever transplant centre the patient is registered. The chance of death and/or removal from the list is irrespective of location and the outcome after transplantation (both short and long-term) will not be affected by centre.
The Advisory Groups will identify areas where new or revised national guidelines relating to transplantation are needed; where appropriate, NHSBT will then commission the appropriate professional body to develop the guidelines and, if adopted, these guidelines will be endorsed by NHSBT. These guidelines must be patient, rather than Centre, focused and consistent with all current national legislation.