Kidney Advisory Group
Download minutes, agendas and papers
Note: Files on this page are in the PDF format unless otherwise stated.
- Wednesday 29 January 2025 - 09:00 to 13:00, via MS Teams
- Wednesday 18 June 2025 - 10:30 to 15:30, venue TBC
- Wednesday 15 October 2025 - 09:00 to 13:00, via MS Teams
October 2023
- ODT clinical governance report (PDF 317KB)
- Access to transplant for liver and kidney patients review (PDF 115KB)
- Review of allocation scheme for infant donors (PDF 127KB)
- Suspended recipient update (PDF 233KB)
July 2023
- Review of matchability score bandings (PDF 232KB)
- ODT clinical governance report - June 2023 (PDF 480KB)
- International collaboration in kidney exchange programme - July 2023 (PDF 172KB)
- Living donor kidney transplantation update - July 2023 (PDF 591KB)
January 2023
October 2022
- ODT clinical governance report - October 2022 (PDF 328KB)
- Suspended recipients deep dive (PDF 260KB)
July 2022
- ODT clinical governance report - July 2022 (PDF 316KB)
- Access to transplant for liver and kidney patients review (PDF 117KB)
- Review of allocation scheme for infant donors (PDF 133KB)
April 2022
November 2021
- ODT clinical governance report (PDF 519KB)
- Summary from statistics and clinical research (PDF 33KB)
- HCV positive donors up to 30 September 2021 (PDF 163KB)
June 2021
- Living donor kidney transplantation update - June 2021 (PDF 123KB)
- Review of kidney fast track scheme (PDF 278KB)
- Late notification of pancreases split from potential multi-visceral blocs (PDF 68KB)
- Access to transplant for liver and kidney patients review (PDF 117KB)
- Summary from statistics and clinical studies (PDF 33KB)
- ODT clinical governance report May 2021 (PDF 373KB)
November 2020
- Guy's and Leeds program for en-bloc (PDF 119KB)
- November 2020 LDKT update (PDF 324KB)
- Proposal to expand KAG membership (PDF 123KB)
- Timing of crossmatch (PDF 24KB)
June 2020
- LDKT: options to restart/expand programmes (PDF 240KB)
- Access to transplant for liver and kidney patients (PDF 153KB)
- Review of infant donors (PDF 134KB)
- Summary from statistics and clinical studies (PDF 25KB)
- Summary of donor discrepancies (PDF 85KB)
- COVID-19 and kidney transplantation (PDF 146KB)
- Donor discrepancy monitoring (PDF 105KB)
- UKLKSS update paper (PDF 499KB)
November 2019
- KOS 2 month review
- KAG UKLKSS November 2019 update paper
- ODT Strategy update
- Pre-emptive listing and waiting time
- Reallocation of kidneys
- Review of infant donors
- Summary from SCS
- Summary of CUSUM monitoring
June 2019
- Summary of CUSUM monitoring
- CUSUM monitoring updating expected rates
- Recording reasons for kidney decline or non-use
- Donor discrepancy monitoring
- Summary of donor discrepancies 2016-18
- Min HLA typing resolution
- DAT2885 Minimum resolution for donor recipient types Table 1
- Liver and kidney patients
- Outcomes of transplanted kidneys that were previously accepted with the pancreas
- Oversight committee - KAG submission June 2019
- Late notification of pancreases split from potential MVT blocs - KAG submission
- Out of hour transplants vs in hour transplant outcomes
- KAG UKLKSS update paper
- Letter to KAG chair
- Organs and tissues to be excluded from the new system of organ and tissue donation in England consultation document
- Summary from S&CS
November 2018
- ABOi tx'n in preference to HLAi tx'n in the UKLKSS
- CIT and XM practices
- CIT paper
- KAG Paed Sub Group (KAG(18)44) Minutes to be ratified
- KAG STWG offer scrutiny schemes recommendations
- KAG UKLKSS update
- Liver and kidney patients
- Positive virology
- Proposed Change to the Kidney Offering Scheme
- Summary from stats and clinical studies
- Summary of CUSUM monitoring
- Transplanting blood group incompatible DD kidneys
- Waiting time from dialysis
June 2018
- Causes of graft failure
- Minimum resolution for donor and patient HLA types
- Donor discrepancy monitoring table
- Donor discrepancy monitoring
- Governance report June 2018
- Hypothermia in DBD donation
- Kidney fast track scheme proposal
- Kidney renal unit annual reports
- Minimum HLA typing resolution
- Proposed kidney offering scheme
- Risk adjusted waiting time
- Statistics and clinical studies summary
- CUSUM monitoring summary
- DCD allocation scheme review
- KAG Paed Sub Group Minutes to be ratified
- NHS Group 2 Kidney Transplant - Waiting List
- Summary from stats and clinical studies
- Transplant centre dashboards
- Centre preference for right and left kidney
- Governance Report
- LDKT 2020 Shared learning events
- Recipient specific criteria
- Update from new kidney offering scheme meeting
- CUSUM monitoring of outcomes
- Letter re offer declines for high priority patients
- Neonatal Kidney Offering Group Final Report
- Sequential heart and kidney transplantation and priority
- Transplanting blood group incompatible kidneys
- Update on consent rates for patient data held
- HLA Donor Discrepancy Monitoring 2016
- Minimum resolution for reporting donor and recipient HLA types
- Activity paper October 2016
- Audit of kidney fast track schemes Dec
- AGs ICT Update
- DCD allocation scheme review
- Electronic forms
- Governance report for KAG December 2016
- Investigation into timings of the donation process
- KAG Paper Prioritisation in the UKLKSS
- Liver and kidney patients
- Long waiting patients
- Offer decline centre comparisons
- Patient Consent
- Prioritisation in the UKLKSS
- Simultaneous Liver kidney FTWU
- Summary from Stats and Clinical Studies
- Summary of CUSUM monitoring
- The future of the ODT Clinical website
- Transplant consent form app
- UK Kidney Offering Scheme
- UKLKSS Non-simultaneous surgery
The major role of the organ Advisory groups is to advise NHSBT to help promote all aspects of organ transplantation and ensure equity of access and best outcomes for all patients.
KAG Advisory Group - Terms of Reference Membership
Chair: Appointment: The Advisory Group Chair will be appointed by NHSBT after consultation with the relevant Advisory Group. Applications for the post will be invited from transplant health care professionals
- Tenure: The Chair will be appointed for 3 years in the first instance, with the possibility of renewal for a subsequent term of two years.
- Remuneration: In recognition of the time spent working in the role of Chairman the Chair’s employing institution will be reimbursed
- Support: The Chair, and the Advisory group, will have defined administrative and statistical support from NHSBT to help deliver the aims of the group.
- Appraisal: the Chair will meet the Associate Medical Director for Organ Donation and Transplantation every year for a formal review of progress made, to agree targets for future work and a work plan.
Members
Membership of the Kidney Advisory Group will typically include:
- Chair
- Voting members: Representation from each designated transplant centre; typically one person representing two centres
- One representative for paediatric kidney transplantation
- One representative of the histocompatibility service
- Non-voting members: Representative from the commissioners of the 4 home nations.
- Representatives from the national Departments of Health
- Director of Organ Donation and Transplantation (ODT)
- Associate Medical Director ODT
- Associate Director of Statistics and Clinical Studies
- Director of Donor Care & Co-ordination
- Clinical Leads for Retrieval and for Donation
Other members co-opted by the Advisory group (may include representatives from relevant professional bodies, societies and Colleges) The Chair, in discussion with members of the Group, will include other appropriate members.
Members will be responsible for bringing to the Advisory Group any relevant concerns or suggestions from the centres they represent: where possible this should be in writing so that the paper can be circulated prior to the meeting. Members are also responsible for circulating minutes and other discussion items and items of relevance within their organisations (to clinicians, managers and other relevant parties).
Members of the Group will also be responsible for responding to relevant items on the Agenda brought forward by the Chair or Associate Medical Director.
Deputy Chair: the Advisory Group will agree a Deputy Chair who will assume the role and duties of the Chair when the Chair is unavailable, when there are possible conflicts of interest or at the request of the Chair.
The representative(s) from each centre will be determined by the Centre Director who will also agree the tenure for each representative’s membership.
Voting
If an agreement cannot be reached by consensus, a vote will be taken: a majority will be binding.
The Chair will have a casting vote but will not take part in the initial vote.
Frequency of meetings
The Advisory Group will meet at least twice a year at a venue to be agreed.
Sub-groups
It is anticipated that the Advisory Groups will have sub-groups to address specific aspects of transplantation or issues; the nature, membership, frequency, life time and venue of these meetings will be at the discretion of the Advisory Group.
The Advisory Group will appoint a sub-group which will be responsible, to the Advisory Group and to ODT, for assessing applications for data that is held by ODT: the sub-group should assess the scientific validity of the request, the analytical methodology, the output and ensure that all interested parties are in support of the application and are recognised in any output (such as an abstract or manuscript); the sub-group should also indicate the priority of each application so that the Associate Director of Statistics and Clinical Audit can prioritise the available resources.
These sub-groups will report formally to the Advisory Group.
Additional meetings
Open meetings It is recommended that Advisory groups will consider holding open meetings where there will be a wider representation of the transplant community.
The Chair, together with the Associate Medical Director, will meet, at least annually, with relevant, interested parties, including patient representative bodies, patient groups and disease-specific patient bodies.
Minutes
The minutes of each meeting will be taken by the NHSBT (ODT) Secretariat.
The minutes and all papers of the Advisory Group meetings that could be requested under the Freedom of Information Act will be published (when approved) on the NHSBT web-site, unless they contain patient - identifiable material.
Minutes will be circulated electronically.
Support
Budget
The Advisory Group will be allocated an agreed budget, administered by NHSBT, which will include travel expenses, hosting of meetings, working parties, consensus meetings and other relevant activities. Accountability for the budget will be with the Chair of the Group but the budget will be held within ODT.
Statistical and analytical support
Each Advisory Group will be allocated an agreed level of support from the Directorate of Statistics and Clinical Audit to support the activities of the group: this support will be used for analysis of outcomes, audit, governance issues, service evaluation, modelling of alternative methods of service delivery and other projects, agreed with the Chair of the Advisory Group, the Associate Director of Statistics and Clinical Audit and the Associate Medical Director ODT.
The Chair of the Group, Associate Director of Statistics and Clinical Audit and Associate Medical Director will meet at least every 6 months to agree the agenda, new projects and assign priorities.
Administrative support
The Corporate Services section of ODT will provide an agreed level of administrative support, to help with the planning and organisation of meetings, minute taking and other relevant matters.
Role of Advisory group
The Advisory Group will:
1. consider formally at each 6-monthly meeting and advise NHSBT on operational aspects of transplantation including:
- organ retrieval
- recipient selection criteria
- methods of organ allocation
- data analysis with respect to activity and outcome.
2. recommend, as necessary, promote and implement changes to the nationally agreed protocols
3. advise NHSBT and other bodies on appropriate methods of monitoring outcomes and interpretation of findings
4. monitor and report on clinical governance with especial reference to
- outcomes and deviations from expected outcome
- deviation from agreed protocols in selection and/or allocation
- equity of access of patients to transplantation throughout the UK
- evaluation and comments on issues raised by investigations into triggers from outcomes analysis, investigations, and other issues
5. identify and promote areas of audit and research
6. remit to ODT matters of practice or policy that require consideration within a broader framework 7. liaise as necessary with the British Transplantation Society and other professional bodies in the development of national standards
8. Provide 6 monthly reports of clinical governance
9. Respond to and advise on or implement aspects of donation and transplant policy that arise from legal and/or policy developments both within the UK and more widely.
Notes
Consideration of selection and allocation will require clarification of the aims of the processes, proposals to measure the outcomes and regular audit to ensure the criteria are followed and adjusted as indicated.
Protocols and policies agreed by the Advisory Groups will need ratification by the Board of NHSBT, prior to implementation.
Equity (in the context of this document) implies that a potential recipient anywhere in the UK will have the same likelihood of being placed on the transplant list and a patient on the transplant list has the same probability of receiving a graft, wherever in the UK he/she resides and at whichever transplant centre the patient is registered. The chance of death and/or removal from the list is irrespective of location and the outcome after transplantation (both short and long-term) will not be affected by centre.
The Advisory Groups will identify areas where new or revised national guidelines relating to transplantation are needed; where appropriate, NHSBT will then commission the appropriate professional body to develop the guidelines and, if adopted, these guidelines will be endorsed by NHSBT. These guidelines must be patient, rather than Centre, focused and consistent with all current national legislation.