Donation Useful Links


These links are provided for additional reference and information only and do not constitute any form of endorsement by NHSBT.

If you are aware of a site that might be of interest to users of this website please contact the webmaster with further details.

ACCORD (Achieving Comprehensive Coordination in Organ Donation)

The ACCORD project 'Achieving Comprehensive Coordination in Organ Donation' is a European Union Joint Action. ACCORD intends to strengthen the full potential of Member States in the field of organ donation and transplantation in order to improve the cooperation between them and to contribute to the effective implementation of the EU Directive 2010/53/EU and the Action Plan on Organ Donation and Transplantation (2009-2015).

AoMRC UK Donation Ethics Committee

The UK Donation Ethics Committee (UKDEC) has been established as an independent source of advice and guidance on ethical aspects of organ donation and transplantation.

It aims to increase professional and public confidence in the ethical basis for decisions and processes in organ donation.

The UKDEC will consider ethical issues in their broader context in society.

It does not seek to increase organ donation directly through its work.

British Organ Donor Society

Administered by a donor family BODY covers a broad spectrum of transplant-related topics on its website, providing links to many of the sources of the information summarised on the site.

Centre for Evidence in Transplantation (CET)

Administered by a donor family BODY covers a broad spectrum of transplant-related topics on its website, providing links to many of the sources of the information summarised on the site.

Diabetes UK

Diabetes UK is the leading charity working for people with diabetes. They fund research, campaign and help people to live with the condition.

Their mission is to improve the lives of people with diabetes and to work towards a future without diabetes.

About 1.4 million people in the UK have been diagnosed with diabetes. This number is set to double by 2010. Another million probably have the condition but don't know it.

Donor Family Network

The Donor Family Network supports the families of organ and tissue donors and promotes organ and tissue donation.

Give2Live

Give2Live was set up in memory of Laura Hamilton, who having received two liver transplants as a toddler, died while waiting for a third transplant in 2007 just weeks before her 21 st birthday.

Laura's parents decided to launch the organisation to raise awareness of organ donation and to encourage more people to join the NHS Organ Donor Register.

Jeanette Crizzle Trust

The Jeanette Crizzle Trust is a research organisation which has been set up to measure public awareness of bone marrow, blood, organ and tissue donation.

Kidney Research UK

Kidney Research UK is the leading UK charity funding research that focuses on the prevention, treatment and management of kidney disease. It also dedicates its work to improving patient care and raising awareness of kidney disease.

Kids Kidney Research

Kids Kidney Research was formed, as the KRAF, by a group of people who had friends and family with kidney disorders. Although they were all adults with kidney disease, they decided to support paediatric kidney research since many would not have been in the position they were in had their conditions been treated in childhood.

30 years on it is one of the leading paediatric charities supporting kidney and urological research, helping to find cures and improve remedial care.

Kidney Wales Foundation

The Kidney Wales Foundation aims to promote improvements in the quality of, and access to, healthcare for kidney patients in Wales as well as raising awareness of the need for more donors.

Through its fundraising it has helped provide dialysis units and finance consultant nephrologists, nurse specialists, social workers and psychologists in hospitals across the whole of Wales. It also plays an important lobbying role for the renal service in Wales.

The Foundation played a lead role in the development of the 'Tell a Loved One' campaign, funded by the Welsh Assembly Government which saw nine major charities work together.

Legacy of Life

Legacy of Life was formed by Sue and Richard Cansdale after the death of their student daughter Zoe, in a road accident in 1998. Zoe subsequently became a tissue donor. Their aims are to make people aware of the breadth of transplantation and to spread the message that organ and tissue donation has benefits for donor families as well as recipients.

Live life then give life

Intially launched as a campaign by two friends with Cystic Fibrosis, Live Life Then Give Life is now a registered UK Charity whose mission is to save and improve the lives of all those in need or receipt of organ and tissue transplants.

The charity works hard to improve education and awareness by giving talks, hosting events and utilising the Media, as well as funding projects that increase the numbers of successful transplants in the UK.

The Nicholas Green Foundation

When seven year old Nicholas Green was shot on holiday in Italy in 1994, his parents Reg and Maggie donated his organs to help improve the lives of seven Italians. This led to a huge increase in Organ Donor Registrations. The Greens continue to campaign on behalf of organ donation and Reg Green has recently written a book in association with United Network for Organ Sharing (UNOS) where he talks to 42 people at different stages of organ transplant.

Transplant Groups

Described as a social network to support transplanted persons and their families across the world. This website is moderated by Dr Gustavo Braslavsky in Argentina, who hopes that recipients,of all organs and tissues will share their experiences and offer information to other people.

Transplant News

Based in Washington DC USA, it is described as "the only independent, twice-monthly newsletter providing up-to-the-minute information on developments in organ, tissue, eye, bone marrow, and stem cell procurement and transplantation".

Transplant Sport UK

Is a registered charity which aims to raise awareness of the need for organ donation in the UK and worldwide by staging sporting events in the UK, including the British Transplant Games, and a variety of other competitions including badminton, volleyball and golf. These demonstrate that people can have a full and active life after transplant, encouraging others to register on the Donor Register.

Transplant Trust

The Trust is the only charity in the UK to fund research across all transplantation disciplines with the clear objective to improve the lives of patients and families affected by transplantation.

The organisation supports the transplant community by hosting and operating www.thetxspace.com the worlds first social networking site in the field of transplantation. The site allows everyone in the transplant community to share experiences and knowledge in a secure online environment.

The Trust' s outreach work includes the organisation of "National Transplant Week", the management of the Donor Bus and annual Donor Awareness Days.

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